ddvaughan.wordpress.com
Blog Info | Coming Unglued
https://ddvaughan.wordpress.com/my-story
The EDS Online Survey. Maybe I should start by saying what this site is not:. It is not an official non-profit organization (although I’ll be happy to recommend some to you). It is not a source of indisputable irrefutable medical and scientific information (but I do have some cool links). It is not a charity or place for donations to be made (I can barely manage my own money – don’t give me yours! SO – if you’ve recently been given a harsh dose of pessimism from a well-intended but ill-inform...You are c...
ddvaughan.wordpress.com
The EDS Online Survey | Coming Unglued
https://ddvaughan.wordpress.com/eds-online-survey
The EDS Online Survey. The EDS Online Survey. Since my husband’s death in 1998 from VEDS, there have been great strides made in the availability of information for patients and families coping with all types of EDS. With the explosion of social networking sites, I’ve managed to “meet” more people with EDS in the last 10 months than in the previous 13 YEARS. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). EDS Network ...
ddvaughan.wordpress.com
Stories | Coming Unglued
https://ddvaughan.wordpress.com/stories
The EDS Online Survey. More than statistics, more than long boring scientific facts, it’s the stories of how Ehlers-Danlos syndrome affects “real” people that matter more than anything. Whether they are facing life-threatening aneurysms, or living life in daily, unending pain – these men, women, and children have one thing in common; they are all FIGHTERS. I’ve been deeply touched and humbled by the stories of the people I’ve met in the last year – with all types of EDS. Their stren...Thank you in advanc...
ddvaughan.wordpress.com
96203_Emily___Mom_20091011_display | Coming Unglued
https://ddvaughan.wordpress.com/2010/11/14/emilys-hope-a-lesson-for-us-all/96203_emily___mom_20091011_display
The EDS Online Survey. Emily’s Hope: A Lesson for Us All. Raquo; 96203 Emily Mom 20091011 display. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new comments via email.
ddvaughan.wordpress.com
Research | Coming Unglued
https://ddvaughan.wordpress.com/hope
The EDS Online Survey. These are just some of the researchers (a.k.a. heroes) who are hard at work on projects that could greatly impact families with EDS and other related connective tissue disorders. If you haven’t already figured it out, it’s up to each of us to stay informed of the latest information and make sure we get it into the hands of those taking care of us or our loved ones. Dr Hal Dietz, Jo. Click to learn more about this project. It not only drastically shortens the length of life, but als...
ddvaughan.wordpress.com
Emily’s Hope: A Lesson for Us All | Coming Unglued
https://ddvaughan.wordpress.com/2010/11/14/emilys-hope-a-lesson-for-us-all
The EDS Online Survey. Emily’s Hope: A Lesson for Us All. November 14, 2010. The WHOLE WIDE WORLD. There isn’t a single shred of self-pity or cynicism in the story that she tells, and in an instant I was acutely aware of my own petty, ridiculous list of complaints. Yes, I’d lost a husband to this awful disease; and yes, I’m fighting for my own son’s life in. Real hope on the other hand, is another matter altogether. It is a precious, rare, and fragile thing;. It is a gamble on getting hurt-. I suppose th...
ddvaughan.wordpress.com
About EDS | Coming Unglued
https://ddvaughan.wordpress.com/ehlers-danlos-syndrome
The EDS Online Survey. Is a group of connective tissue disorders, all of which result from genetic defects in collagen production. There are 13 types of collagen in our bodies – all affecting different parts and systems. The types of Ehlers-Danlos Syndrome are broken down according to symptoms and also by the gene involved in causing the collagen deficiency. EDS Type I and II. Smooth, velvety skin. Complications from joint hypermobility. Muscle hypotonia, delayed gross motor development. Thin, translucen...
ddvaughan.wordpress.com
emily3 | Coming Unglued
https://ddvaughan.wordpress.com/2010/11/14/emilys-hope-a-lesson-for-us-all/emily3
The EDS Online Survey. Emily’s Hope: A Lesson for Us All. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new comments via email. Notify me of new posts via email. Blog ...
alice-imconfused.blogspot.com
im confused: bit of making-do-and-mending
http://alice-imconfused.blogspot.com/2013/05/bit-of-making-do-and-mending.html
My bedside table were originally champagne boxes. I had then for around 17 years, so when I had my room decorated they were given a white wash. they are actually a really neat idea. slim, so I don't bash into them when I get out of bed. keeps some of books in order. Now the bedroom is peaceful. potters clay on the walls, easy on the senses. Nice post. thanks for the shared with us. Hot Washed Pet Flakes. 19 November 2015 at 11:19. Subscribe to: Post Comments (Atom). View my complete profile.
