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Our Life with Ehlers Danlos Syndrome | "Suffering the Slings and Arrows of Outrageous Fortune"

"Suffering the Slings and Arrows of Outrageous Fortune" (by Beth)

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Our Life with Ehlers Danlos Syndrome | "Suffering the Slings and Arrows of Outrageous Fortune" | slingsandarrowsofoutrageousfortune.wordpress.com Reviews
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Suffering the Slings and Arrows of Outrageous Fortune (by Beth)
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1 eds types
2 our story
3 the driscoll theory
4 diamox pointers
5 ask a question
6 general eds questions
7 mast cell questions
8 invisible illness questions
9 gi questions
10 thanks in advance
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Our Life with Ehlers Danlos Syndrome | "Suffering the Slings and Arrows of Outrageous Fortune" | slingsandarrowsofoutrageousfortune.wordpress.com Reviews

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"Suffering the Slings and Arrows of Outrageous Fortune" (by Beth)

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EDS Types | Our Life with Ehlers Danlos Syndrome

https://slingsandarrowsofoutrageousfortune.wordpress.com/eds-types

Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Hypermobility (type III) – extreme hypermobility, chronic pain, early onset osteoperosis are hallmarks of this type. Classic (previously types I and II) – hypermobile joints, serious skin involvement: highly extensible skin, fragile, prone to scarring. The hypermobility, classic and vascular types a...

2

Please Take This Poll | Our Life with Ehlers Danlos Syndrome

https://slingsandarrowsofoutrageousfortune.wordpress.com/2014/08/21/please-take-this-poll

Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Please Take This Poll. All you need to do is take a moment and answer the questions in this poll if you are affected by chronic illness. The more responses I get, the better! Check all that apply:. Need your help again…. Please Take This Poll" (1). 10/17/2014 at 10:05 am. I await your book eagerly!

3

Mast Cell Questions | Our Life with Ehlers Danlos Syndrome

https://slingsandarrowsofoutrageousfortune.wordpress.com/ask-a-question/mast-cell-questions

Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Ask mast cell questions here…. MCAS, anti-histamines, food intolerances, etc. Mast Cell Questions" (4). 08/25/2015 at 7:38 pm. What supplements and at what dosages would you recommend taking for someone with severe diarrhea due to MCAD, POTS, and gastro issues secondary to EDS? 10/05/2015 at 11:48 am.

4

Dosages, Tips, Etc… | Our Life with Ehlers Danlos Syndrome

https://slingsandarrowsofoutrageousfortune.wordpress.com/diamox-pointers/dosages-tips-etc

Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Dosages, Tips, Etc…. If you are wanting information that you can pass along to a doctor that might help convince him to let you trial Diamox, go to this post: Diamox Pointers. My daughter started out on 125 mgs of Diamox at night although I know some people have found relief with half of that dose&#...

5

EDS 101 | Our Life with Ehlers Danlos Syndrome

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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Normal collagen is like a sturdy rubber band – it stretches, then rebounds to its original form. The collagen of someone with EDS is more like bubble gum – it stretches too far, becomes brittle, tears and shreds. Imagine trying to hold your body together with bubble gum! The ligaments, tendons and c...

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Something Holding Me Together: January 2012

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Something Holding Me Together. A snapshot of life and living with EDS,POTS, and Hip Dysplasia. Friday, January 27, 2012. Yesterday I started getting a lot of pain from lower body exercises. I talked to my physical therapist and I see him Monday and will be going in twice a week now instead of once every two weeks. I think that there's enough going on right now that it is necessary at this point. My shoulders and all are doing ok. They seem to be tolerating the exercises fairly well. Well, duh.it was!

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Something Holding Me Together: Ramblings

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Something Holding Me Together. A snapshot of life and living with EDS,POTS, and Hip Dysplasia. Tuesday, September 17, 2013. One bum shoulder (right) and with the fact that I'm right handed I figured I'd sit down and begin the art of mastering such tedious matters left handed! Hip surgery is approaching and as I prepare for that I'm also busy with pre-op appointments, commissions ect. ect. ect. One of many paintings I've been working on! Subscribe to: Post Comments (Atom). View my complete profile. Find Y...

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Something Holding Me Together: October 2012

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Something Holding Me Together. A snapshot of life and living with EDS,POTS, and Hip Dysplasia. Wednesday, October 31, 2012. I NEED some serious funnies today.its medicine for the soul. From the Deep Thinkers Society Joke Book:. If you scare yourself half to death twice, does that mean you're dead? If you run behind a car, do you get exhausted? Wednesday, October 24, 2012. Verse of the week. I have spoken, and I will bring it to pass; I have purposed, and I will do it." Isaiah 46:11. Verse of the week.

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Pain with Purpose: January 2015

http://painwithpurpose.blogspot.com/2015_01_01_archive.html

Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Thursday, January 29, 2015. As I mentioned in my previous post. My mito specialist wanted to check for mitochondrial DNA depletion.well, those results are back. And guess what- -the results do show that I have a mtDNA depletion! Speaking of whole exome sequencing, it looks like the test will be started next week! I also have follow-ups with my GI specialist and Cardiology, so it will be a...

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Everyday Chaos

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Our crazy, chaotic life with chiari and EDS. Funny Things Kids Say. Subscribe to this blog's feed. Spina Bifida Occulta is a common condition, occurring in 10% - 20% of otherwise healthy people. When linked with EDS and tethered cord problems can arise. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Fooducate - Eat a bit better. Health Blogs and Websites. Our Life With Ehlers Danlos Syndrome. Fanta...

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Pain with Purpose: November 2014

http://painwithpurpose.blogspot.com/2014_11_01_archive.html

Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Thursday, November 20, 2014. Good news and bad news. We got the CT scan results yesterday! The images showed that I had something called Buried Bumper Syndrome (a rare complication with feeding tubes).basically, the balloon on the j-tube (which is inflated with 1 ml of water to hold it in place) got stuck in my abdominal muscle. :-O No wonder I am dealing with pain and spasms! Please pray...

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Everyday Chaos: May 2013

http://everydaychaos.typepad.com/every_day_chaos/2013/05/index.html

Our crazy, chaotic life with chiari and EDS. Funny Things Kids Say. Subscribe to this blog's feed. Spina Bifida Occulta is a common condition, occurring in 10% - 20% of otherwise healthy people. When linked with EDS and tethered cord problems can arise. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Fooducate - Eat a bit better. Health Blogs and Websites. Our Life With Ehlers Danlos Syndrome. Fanta...

painwithpurpose.blogspot.com painwithpurpose.blogspot.com

Pain with Purpose: June 2015

http://painwithpurpose.blogspot.com/2015_06_01_archive.html

Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Tuesday, June 23, 2015. Last week, I received my sleep study and EEG results! My sleep dr. wants me to go back to the sleep lab. He put in an order for CPAP settings to be calibrated and titrated to see if I can tolerate it better. If not, he mentioned again that we may need to switch to BiPAP. This 4th sleep study is scheduled for next Thursday, July 2nd. Thank you for checking in! Anywa...

painwithpurpose.blogspot.com painwithpurpose.blogspot.com

Pain with Purpose: March 2015

http://painwithpurpose.blogspot.com/2015_03_01_archive.html

Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Wednesday, March 18, 2015. Cardiac findings and ENT update. Thank you for checking in and for your continued prayers! So much keeps happening, and this journey just gets more and more complicated. :/. But this I remember: the Lord fights my every battle, so I will not fear. He goes before me and never forsakes me! Mitochondria are in every cell! Monday, March 9, 2015. You go before me eve...

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Everyday Chaos: October 2012

http://everydaychaos.typepad.com/every_day_chaos/2012/10/index.html

Our crazy, chaotic life with chiari and EDS. Funny Things Kids Say. Subscribe to this blog's feed. Spina Bifida Occulta is a common condition, occurring in 10% - 20% of otherwise healthy people. When linked with EDS and tethered cord problems can arise. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Fooducate - Eat a bit better. Health Blogs and Websites. Our Life With Ehlers Danlos Syndrome. Fanta...

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Our Life with Ehlers Danlos Syndrome | "Suffering the Slings and Arrows of Outrageous Fortune"

Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Please Take This Poll. All you need to do is take a moment and answer the questions in this poll if you are affected by chronic illness. The more responses I get, the better! Check all that apply:. The Summer of Bleh. I had such great intentions, to post frequently and all that. But, life happen...

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