somethingholdingmetogether.blogspot.com
Something Holding Me Together: January 2012
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Something Holding Me Together. A snapshot of life and living with EDS,POTS, and Hip Dysplasia. Friday, January 27, 2012. Yesterday I started getting a lot of pain from lower body exercises. I talked to my physical therapist and I see him Monday and will be going in twice a week now instead of once every two weeks. I think that there's enough going on right now that it is necessary at this point. My shoulders and all are doing ok. They seem to be tolerating the exercises fairly well. Well, duh.it was!
somethingholdingmetogether.blogspot.com
Something Holding Me Together: Ramblings
http://somethingholdingmetogether.blogspot.com/2013/09/ramblings.html
Something Holding Me Together. A snapshot of life and living with EDS,POTS, and Hip Dysplasia. Tuesday, September 17, 2013. One bum shoulder (right) and with the fact that I'm right handed I figured I'd sit down and begin the art of mastering such tedious matters left handed! Hip surgery is approaching and as I prepare for that I'm also busy with pre-op appointments, commissions ect. ect. ect. One of many paintings I've been working on! Subscribe to: Post Comments (Atom). View my complete profile. Find Y...
somethingholdingmetogether.blogspot.com
Something Holding Me Together: October 2012
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Something Holding Me Together. A snapshot of life and living with EDS,POTS, and Hip Dysplasia. Wednesday, October 31, 2012. I NEED some serious funnies today.its medicine for the soul. From the Deep Thinkers Society Joke Book:. If you scare yourself half to death twice, does that mean you're dead? If you run behind a car, do you get exhausted? Wednesday, October 24, 2012. Verse of the week. I have spoken, and I will bring it to pass; I have purposed, and I will do it." Isaiah 46:11. Verse of the week.
painwithpurpose.blogspot.com
Pain with Purpose: January 2015
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Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Thursday, January 29, 2015. As I mentioned in my previous post. My mito specialist wanted to check for mitochondrial DNA depletion.well, those results are back. And guess what- -the results do show that I have a mtDNA depletion! Speaking of whole exome sequencing, it looks like the test will be started next week! I also have follow-ups with my GI specialist and Cardiology, so it will be a...
everydaychaos.typepad.com
Everyday Chaos
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Our crazy, chaotic life with chiari and EDS. Funny Things Kids Say. Subscribe to this blog's feed. Spina Bifida Occulta is a common condition, occurring in 10% - 20% of otherwise healthy people. When linked with EDS and tethered cord problems can arise. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Fooducate - Eat a bit better. Health Blogs and Websites. Our Life With Ehlers Danlos Syndrome. Fanta...
painwithpurpose.blogspot.com
Pain with Purpose: November 2014
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Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Thursday, November 20, 2014. Good news and bad news. We got the CT scan results yesterday! The images showed that I had something called Buried Bumper Syndrome (a rare complication with feeding tubes).basically, the balloon on the j-tube (which is inflated with 1 ml of water to hold it in place) got stuck in my abdominal muscle. :-O No wonder I am dealing with pain and spasms! Please pray...
everydaychaos.typepad.com
Everyday Chaos: May 2013
http://everydaychaos.typepad.com/every_day_chaos/2013/05/index.html
Our crazy, chaotic life with chiari and EDS. Funny Things Kids Say. Subscribe to this blog's feed. Spina Bifida Occulta is a common condition, occurring in 10% - 20% of otherwise healthy people. When linked with EDS and tethered cord problems can arise. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Fooducate - Eat a bit better. Health Blogs and Websites. Our Life With Ehlers Danlos Syndrome. Fanta...
painwithpurpose.blogspot.com
Pain with Purpose: June 2015
http://painwithpurpose.blogspot.com/2015_06_01_archive.html
Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Tuesday, June 23, 2015. Last week, I received my sleep study and EEG results! My sleep dr. wants me to go back to the sleep lab. He put in an order for CPAP settings to be calibrated and titrated to see if I can tolerate it better. If not, he mentioned again that we may need to switch to BiPAP. This 4th sleep study is scheduled for next Thursday, July 2nd. Thank you for checking in! Anywa...
painwithpurpose.blogspot.com
Pain with Purpose: March 2015
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Life with Small Fiber Polyneuropathy, EDS Type III, POTS, Mitochondrial DNA Depletion Syndrome, and Wilson's Disease. Wednesday, March 18, 2015. Cardiac findings and ENT update. Thank you for checking in and for your continued prayers! So much keeps happening, and this journey just gets more and more complicated. :/. But this I remember: the Lord fights my every battle, so I will not fear. He goes before me and never forsakes me! Mitochondria are in every cell! Monday, March 9, 2015. You go before me eve...
everydaychaos.typepad.com
Everyday Chaos: October 2012
http://everydaychaos.typepad.com/every_day_chaos/2012/10/index.html
Our crazy, chaotic life with chiari and EDS. Funny Things Kids Say. Subscribe to this blog's feed. Spina Bifida Occulta is a common condition, occurring in 10% - 20% of otherwise healthy people. When linked with EDS and tethered cord problems can arise. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Fooducate - Eat a bit better. Health Blogs and Websites. Our Life With Ehlers Danlos Syndrome. Fanta...
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