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prunebelly.org

Prune Belly Syndrome

Put a Star in the Sky. Quality of Life Study. Support for today . Hope for Tomorrow. Building a better world for children. Our organization is completely funded through the generous donations of our supporters. As a nonprofit organization, we take pride in knowing that 86% of monies raised directly toward accomplishing our goals while the remaining 14% is used to cover the cost of administrative and fundraising tasks. Support for Those Dealing with Prune Belly Syndrome / Eagle-Barrett Syndrome. There is ...

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CONTACTS AT PRUNEBELLY.ORG

The Prune Belly Syndrome Support Network

Maryann Hall

PO B●●●●6071

Phil●●●●ohia , Pennsylvania, 19154

US

1.85●●●●7276
mh●●●@prunebelly.org

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The Prune Belly Syndrome Support Network

Maryann Hall

PO B●●●●6071

Phil●●●●ohia , Pennsylvania, 19154

US

1.85●●●●7276
mh●●●@prunebelly.org

View this contact

The Prune Belly Syndrome Support Network

Debi Apgar

121 P●●●●●e Ave

Pis●●●way , New Jersey, 08854

US

1.73●●●●6407
da●●●●@prunebelly.org

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Prune Belly Syndrome | prunebelly.org Reviews
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Put a Star in the Sky. Quality of Life Study. Support for today . Hope for Tomorrow. Building a better world for children. Our organization is completely funded through the generous donations of our supporters. As a nonprofit organization, we take pride in knowing that 86% of monies raised directly toward accomplishing our goals while the remaining 14% is used to cover the cost of administrative and fundraising tasks. Support for Those Dealing with Prune Belly Syndrome / Eagle-Barrett Syndrome. There is ...
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1 sponsor a child
2 forum
3 board members
4 meet some survivors
5 membership
6 membership signup page
7 friends of pbs
8 medical professionals
9 survivors
10 family members
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sponsor a child,forum,board members,meet some survivors,membership,membership signup page,friends of pbs,medical professionals,survivors,family members,donate,research donations,little wishes,outreach,in memorium,erin’s wish walk,convention scholarships
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Prune Belly Syndrome | prunebelly.org Reviews

https://prunebelly.org

Put a Star in the Sky. Quality of Life Study. Support for today . Hope for Tomorrow. Building a better world for children. Our organization is completely funded through the generous donations of our supporters. As a nonprofit organization, we take pride in knowing that 86% of monies raised directly toward accomplishing our goals while the remaining 14% is used to cover the cost of administrative and fundraising tasks. Support for Those Dealing with Prune Belly Syndrome / Eagle-Barrett Syndrome. There is ...

INTERNAL PAGES

prunebelly.org prunebelly.org
1

Medical Professionals | Prune Belly Syndrome

http://prunebelly.org/membership/medical-professionals

Put a Star in the Sky. Quality of Life Study. Prune Belly Syndrome Network. Philadelphia, PA 19154. Prune Belly Syndrome is a registered 501(c)(3) nonprofit organization. All donations are tax deductible in full or in part.

2

Sponsor a Child | Prune Belly Syndrome

http://prunebelly.org/sponsor-a-child

Put a Star in the Sky. Quality of Life Study. Learn more about sponsoring a child? Please fill out the “Sponsoring A Child” form below and we will provide additional information. If you are interested in sponsoring a child attend an upcoming convention. We offer 4 levels of sponsorship Bronze $50 "Register a child" Silver $100 "Sponsor child's event" Gold $250 "Half Scholarship" Platinum $500 "Full Scholarship". Prune Belly Syndrome Network. Philadelphia, PA 19154.

3

Education | Prune Belly Syndrome

http://prunebelly.org/donate/education

Put a Star in the Sky. Quality of Life Study. Upon request, a receipt will be mailed to you for all monetary contributions. Because we are a 501(c)(3) non-profit organization, your donation is tax-deductible. A copy of our IRS determination papers is also available on request. Please consider making a donation! To contribute by mail, our address is:. Prune Belly Syndrome Network, Inc. Philadelphia, Pa 19154. Prune Belly Syndrome Network. Philadelphia, PA 19154.

4

In Memorium | Prune Belly Syndrome

http://prunebelly.org/donate/in-memorium

Put a Star in the Sky. Quality of Life Study. Upon request, a receipt will be mailed to you for all monetary contributions. Because we are a 501(c)(3) non-profit organization, your donation is tax-deductible. A copy of our IRS determination papers is also available on request. Please consider making a donation! To contribute by mail, our address is:. Prune Belly Syndrome Network, Inc. Philadelphia, Pa 19154. Prune Belly Syndrome Network. Philadelphia, PA 19154.

5

Friends of PBS | Prune Belly Syndrome

http://prunebelly.org/membership/friends-of-pbs

Put a Star in the Sky. Quality of Life Study. Prune Belly Syndrome Network. Philadelphia, PA 19154. Prune Belly Syndrome is a registered 501(c)(3) nonprofit organization. All donations are tax deductible in full or in part.

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gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: Prayers for Baby Bowers

http://gusgang.blogspot.com/2008/07/prayers-for-baby-bowers.html

Because God Understands Suffering. Wednesday, July 30, 2008. Prayers for Baby Bowers. Pete and I have recently taken over one of the local blood drives. While Pete was calling one of our regular donors, he found out about Baby Bowers. I'll pass it along. Until then, just pray. I hope the surgery goes well. I will pray with you. My Blog: Growing Piggy Bank. Subscribe to: Post Comments (Atom). Henry Larsen Doriot "Gus". Prune Belly Syndrome Network. Miscarriage @ Family.org. View my complete profile.

gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: Two New Friends

http://gusgang.blogspot.com/2008/04/two-new-friends.html

Because God Understands Suffering. Thursday, April 24, 2008. We've got two new Gus' Gang friends to welcome! First is a little fellow named Caleb. Right now he is hanging out at St. Judes. In Memphis, TN because he is undergoing treatment for a rare cancer called ATRT. I hope to soon get permission from his family to post a photo and his carepage. Address. Caleb's parents live in Greeneville. Next, I'd like to tell you all about a gal named Cassidy. To your Prayer Lists! Mrsound and mrs.sound. 女性会員様増加につき...

gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: Meet Aidan!

http://gusgang.blogspot.com/2009/03/meet-aidan.html

Because God Understands Suffering. Tuesday, March 03, 2009. I just found out about this little guy today. His name is Aidan and he's a complete cutie! Aidan has been diagnosed with Eagle-Barrett Syndrome. And let his family know you are praying for them.words of encouragement are so powerful! End Stage Renal Disease. Hi Jenny. I am happy to award you the Kreativ Blogger award. You have a beautifully creative site, and you use your creativity to help these precious children! 65292;為政府立案,希望給客戶滿意照顧病患...

gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: The Special Mother

http://gusgang.blogspot.com/2008/05/special-mother.html

Because God Understands Suffering. Sunday, May 11, 2008. I wanted to share this famous poem by Erma Bombeck. I can't help but think about all you moms out there who are daily living (and thriving! With your wonderful special needs kids. Though Gus was only with us a short time, I was certainly plunged into that world and I know both the hardships and joys you all experience on a daily basis. My wish is for each of you to have the most wonderful Mother's Day ever! He's used to profanity.". Once the shock ...

gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: Urgent Prayers for Chloe and Family

http://gusgang.blogspot.com/2008/09/urgent-prayers-for-chloe-and-family.html

Because God Understands Suffering. Tuesday, September 16, 2008. Urgent Prayers for Chloe and Family. Chloe died Tuesday night at 10:51. Please continue to join with me in prayer for her mom, dad and little sister. I just read this over at Chloe's carepage:. So sorry to hear this! May her family find peace. I will pray to god for peace.I am very sorry . Baby Health Care, Child Health Tips, Parenting Guide, Baby Strollers, Baby Massage. Saying prayers for her family. Mom and Dad-. Henry Larsen Doriot "Gus".

gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: Letter to Gus

http://gusgang.blogspot.com/2008/05/letter-to-gus.html

Because God Understands Suffering. Friday, May 30, 2008. I am posting this letter one day early because I will not be on the computer tomorrow.it is Celebrate Gus Day! Gus died on May 31, 2006 and we will be celebrating his life this evening and all day tomorrow. I have found it very therapeutic to write letters to Gus. The following is the letter I’ve written to mark the second anniversary of this death…or rather, his “homegoing”. Contacting the dead is wrong and quite dangerous. My hope is that I will ...

gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: Minkee-liscious Quilts

http://gusgang.blogspot.com/2008/08/minkee-liscious-quilts.html

Because God Understands Suffering. Tuesday, August 05, 2008. I just wanted to share with you all these wonderful quilts that have been donated to Gus' Gang! They were made by my friend, Joy Smelser. And they are WONDERFUL.anyone who knows what Minkee. Is knows that I am not fibbing here! Joy has backed these quilts with Minkee. And has even added a few squares to the front of some of the quilts. Minkee. Joy also made some little bitty quilts that I've been calling " Stim. These are SOOOOO beautiful!

gusgang.blogspot.com gusgang.blogspot.com

Gus' Gang: Johnny Jackson

http://gusgang.blogspot.com/2008/06/johnny-jackson.html

Because God Understands Suffering. Friday, June 06, 2008. I just read about a little guy named Johnny Jackson. Who has died due to secondary drowning. My heart is heavy for this mom right now and I think we should all remember her and the rest of the family in our prayers. It breaks my heart that such tragedy has followed what started out to be a fun time.very sad. Oh my goodness, that just breaks my heart. That poor family. How are you doing with School? Subscribe to: Post Comments (Atom).

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Prune Belly Syndrome

Put a Star in the Sky. Quality of Life Study. Support for today . Hope for Tomorrow. Building a better world for children. Our organization is completely funded through the generous donations of our supporters. As a nonprofit organization, we take pride in knowing that 86% of monies raised directly toward accomplishing our goals while the remaining 14% is used to cover the cost of administrative and fundraising tasks. Support for Those Dealing with Prune Belly Syndrome / Eagle-Barrett Syndrome. There is ...

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Prune Belly Syndrome Network, Inc - Home

Contribute to the PBSN. Buy Music and Merchandise. What do I do? Feel free to call us at 855-ASK-PBSN. A Donation as little as 10 dollars can help bring hope. To individuals and families coping with Prune Belly. You will be given the option to choose where you want your donation to go to work. Just hit Donate Now. Support for today, hope for tomorrow. 07 Sep 2012 9:40 PM • Debi Apgar-Fehring. Interact on our PBSN Facebook Page. Join Our PBSN Community. Benefits of Joining Include:. And much much more!

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