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jo-liveyourlife.blogspot.com

Live Your Life

A blog about living my life with Cystic Fibrosis, an inherited disease. Hopefully an uplifting, positive blog giving hope to any other sufferers.

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Live Your Life | jo-liveyourlife.blogspot.com Reviews
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A blog about living my life with Cystic Fibrosis, an inherited disease. Hopefully an uplifting, positive blog giving hope to any other sufferers.
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1 live your life
2 pages
3 before the blog
4 bucket list
5 dog grooming
6 weight gain
7 wedding
8 posted by
9 1 comment
10 email this
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Live Your Life | jo-liveyourlife.blogspot.com Reviews

https://jo-liveyourlife.blogspot.com

A blog about living my life with Cystic Fibrosis, an inherited disease. Hopefully an uplifting, positive blog giving hope to any other sufferers.

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jo-liveyourlife.blogspot.com jo-liveyourlife.blogspot.com
1

Live Your Life: Frimley appointment

http://www.jo-liveyourlife.blogspot.com/2015/05/frimley-appointment.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Tuesday, 19 May 2015. Therefore had my appointment at Frimley. I needed to be there for 9.30 so it was an early start. Usually mornings are better for me, but of course on this one particular morning I would feel like crap- sod's law! I managed to get there though (first time driving myself) and the appointment was going swimmingly. Lung function had surprisingly gone up- might have only been by 1%, but up is UP!

2

Live Your Life: May 2015

http://www.jo-liveyourlife.blogspot.com/2015_05_01_archive.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Tuesday, 19 May 2015. Therefore had my appointment at Frimley. I needed to be there for 9.30 so it was an early start. Usually mornings are better for me, but of course on this one particular morning I would feel like crap- sod's law! I managed to get there though (first time driving myself) and the appointment was going swimmingly. Lung function had surprisingly gone up- might have only been by 1%, but up is UP!

3

Live Your Life: April 2015

http://www.jo-liveyourlife.blogspot.com/2015_04_01_archive.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Monday, 27 April 2015. First official Frimley appointment. Friday I had my first official appointment under Frimley Park hospital's care. I know it's not fair to compare the two hospitals because Frimley has such a small unit compared to the Brompton, but it was hard not to! Great parking, no queue times, people who had time for me, it was a welcome change :). I'm sure most people with CF would say the same thing.

4

Live Your Life: "Bucket List"

http://www.jo-liveyourlife.blogspot.com/p/bucket-list.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? See whales in the wild. Hold a live lobster. Learn to play an instrument. Catch a fish (then put it back! Be in the newspaper. Be on the radio. Actually stand up on a surfboard in the sea. Volunteer at a soup kitchen/homeless shelter. Learn how to whistle with my fingers. Get over fear of needles. Watch "The Bucket List" film. See the Northern Lights. Go on a cruise. 7 March 2012 at 08:20. 8 April 2013 at 10:21. 9 Sep...

5

Live Your Life: Weight gain :)

http://www.jo-liveyourlife.blogspot.com/2015/07/weight-gain.html

Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Sunday, 26 July 2015. I've managed to avoid IVs for a bit longer! For me, this is great news as I was becoming pretty dependent on them whilst at Brompton because they wouldn't offer anything else. However, at Frimley they are giving me oral meds when I feel I need a little boost, instead of bringing out the big guns (IVs), which I could become resistant to if I have them too often. Barney at the beach. On the groomin...

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Live Your Life

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