aldconnect.com aldconnect.com

aldconnect.com

ALD Connect

The mission of ALD Connect is to improve health outcomes for individuals with X-linked adrenoleukodystrophy (ALD) by raising disease awareness, empowering patients, and accelerating the translation of scientific advances into better clinical care.

http://www.aldconnect.com/

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CONTACTS AT ALDCONNECT.COM

Florian Eichler

608A Fr●●●●●●●Streeet

Cam●●●dge , Massachusetts, 02139

United States

1.61●●●●7121
FE●●●●●●@partners.org

View this contact

Florian Eichler

608A Fr●●●●●●●Streeet

Cam●●●dge , Massachusetts, 02139

United States

1.61●●●●7121
FE●●●●●●@partners.org

View this contact

Florian Eichler

608A Fr●●●●●●●Streeet

Cam●●●dge , Massachusetts, 02139

United States

1.61●●●●7121
FE●●●●●●@partners.org

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ALD Connect | aldconnect.com Reviews
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The mission of ALD Connect is to improve health outcomes for individuals with X-linked adrenoleukodystrophy (ALD) by raising disease awareness, empowering patients, and accelerating the translation of scientific advances into better clinical care.
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KEYWORDS
1 X-linked adrenoleukodystrophy
2 ALD
3 adrenomyeloneuropathy
4 AMN
5 Addison’s disease
6 adrenal insufficiency
7 bone marrow transplant
8 Lorenzo’s Oil
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10 coupons
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donate now,just diagnosed,start here,resources,for patients,families,resources for,researchers,researcher resources,ald educational seminars,take action,for researchers,clinical trial database,trials,browse recruiting trials,clinical trial news,about us
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ALD Connect | aldconnect.com Reviews

https://aldconnect.com

The mission of ALD Connect is to improve health outcomes for individuals with X-linked adrenoleukodystrophy (ALD) by raising disease awareness, empowering patients, and accelerating the translation of scientific advances into better clinical care.

INTERNAL PAGES

aldconnect.com aldconnect.com
1

Other Resources

http://www.aldconnect.com/other_resources.php

For Patients and Families. A guide for newly diagnosed patients and families. Find an ALD/AMN specialist. Connect with other patients and families. Register for ALD Connect updates. Do you have suggestions, feedback, or. Questions about ALD Connect? Email us at: info@aldconnect.org. Leukodystrophy resources for patients and families. Advocacy, research, and. Advocacy, research, and. Advocacy, research, and. Advocacy, research, and. Advocacy, research, and. Korean Society of ALD. Advocacy, research, and.

2

Raise awareness

http://www.aldconnect.com/raise_ald_awareness.php

Get Involved to Help Fight ALD. Take Action on Newborn Screening. Donate Samples to ALDConnect. Participate in a Clinical Trial. Do you have suggestions, feedback, or. Questions about ALD Connect? Email us at: info@aldconnect.org. For Patients and Families. A guide for newly diagnosed patients and families. Learn More about ALD? Find an ALD/AMN specialist. Connect with other patients and families. Register for ALD Connect updates. Review the standard of care for ALD. Membership and Site listing.

3

Clinical Trials 101

http://www.aldconnect.com/clinical_trials_101.php

Do you have suggestions, feedback, or. Questions about ALD Connect? Email us at: info@aldconnect.org. Learn more about what it means to be in a clinical trial. What is a Clinical Trial, and Why are They Necessary for ALD/AMN? Clinical Trials 101: Placebo-Controlled Trials. Clinical Trial and Other Important Definitions. Familarizing yourself with terms related to clinical trials can improve your understanding of the clinical trial process and can better inform your decision to enroll in a clinical trial&...

4

Post a Clinical Trial

http://www.aldconnect.com/post_a_clinical_trial.php

Resources for ALD Professionals. Review the standard of care for ALD. Membership and Site listing. ALD News and Events. Sample sharing and access. Post a Clinical Trial. Do you have suggestions, feedback, or. Questions about ALD Connect? Email us at: info@aldconnect.org. Post a Clinical Trial. To post news of a clinical trial for ALD/AMN patients are eligible, please send us an email ( admin@ALDconnect.org. For Patients and Families. A guide for newly diagnosed patients and families. Learn More about ALD?

5

What is ALD?

http://www.aldconnect.com/what_is_ald.php

Learn More about ALD. Do you have suggestions, feedback, or. Questions about ALD Connect? Email us at: info@aldconnect.org. Learn More about ALD. For Patients and Families. O What is ALD? O Contact a Disease Specialist. O Clinical Research Blog. O Other Leukodystrophy Resources. O Become an ALD Connect Member. O Post an ALD Clinical Trial. O ALD CRO Capabilities. O ALD Connect Events. O ALD Connect Samples. O ALD Connect Historical Data. O Clinical Trial News. O Clinical Trials 101. O ALD Connect Members.

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Learn about the biology and symptoms of ALD. Find an ALDspecialist in your area. Join the ongoing efforts of ALD advocates. Find out about upcoming ALD Connect meetings, learn more about our trial resources, and stay in touch with the latest ALD/AMN research findings. ALD Connect Patient Portal is coming soon - check back for updates! ALD Connect Annual Meeting will be held in Boston, MA Fall 2015. For Patients and Families. A guide for newly diagnosed patients and families. Learn More about ALD?

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Learn about the biology and symptoms of ALD. Find an ALDspecialist in your area. Join the ongoing efforts of ALD advocates. Find out about upcoming ALD Connect meetings, learn more about our trial resources, and stay in touch with the latest ALD/AMN research findings. ALD Connect Patient Portal is coming soon - check back for updates! ALD Connect Annual Meeting will be held in Boston, MA Fall 2015. For Patients and Families. A guide for newly diagnosed patients and families. Learn More about ALD?

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